Is There a Manual? What Nobody Ever Told Women About the Second Half of Their Own Bodies

I was a girl who actually got the information. And it still was not enough. Because nobody ever continued the conversation.

Woman looking for answers about menopause -- the manual nobody wrote, woman sitting on a stack of books reading.

I have been thinking about a manual.

Not a medical textbook. Not a wellness program. A manual. The kind that comes in the box when you buy something complicated, written by someone who actually knows how it works, in plain language, covering everything from the basic operation to what happens years later when certain parts start breaking and behaving in strange ways. That kind of manual.

Nobody gave women that manual. Not for the second half of our lives. Not for the part that comes after the beginning, after the years of building and raising and doing, after the body shifts and the hormones change and the landscape of who you are starts quietly rearranging itself while you are busy with everything else.

I am fifty-nine years old. I am well-read. I went to graduate school. I am well traveled, which I consider an education in itself. I have been paying attention my entire life.

And I am still, at fifty-nine, piecing together information about my own body that I should have had at forty. Or thirty-five. Or the day someone handed me a manual that nobody wrote.

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What Health Class Actually Covered

I went to Catholic school. All girls. Health class existed, technically, in the sense that the subject appeared on the schedule and a teacher stood at the front of the room.

Sex education was brief, clinical, and concluded before anyone had the opportunity to ask a follow-up question. The clear implication was that the topic had been handled and we could all move along. What it did not cover: perimenopause, menopause, postmenopause, hormonal transitions of any kind, what happens to a woman’s body between forty and seventy, or anything else that would have been genuinely useful to know.

My mother, who was in nursing school at the time and had a more realistic view of what we were and were not being taught, took my sister and me to a private class with an instructor who specialized in teaching sex education to blind and deaf students. Which meant she had worked out how to explain the human body with absolute precision and zero assumption. No shortcuts. No euphemism.

It was the clearest, most straightforward information I had ever received about how a body works. I remember thinking: why does everyone not get this.

My younger aunts, around the same time, pressed a copy of Our Bodies Ourselves into our hands. This was genuinely revolutionary literature in its moment, a book written by women, for women, insisting that women deserved accurate information about their own bodies. My aunts were ahead of their time.

I tell you this because I was, by any reasonable measure, a girl who actually received the information. My mother made sure of it. My aunts made sure of it. I was better equipped than most of my classmates.

And it still was not enough. Because the information stopped.

The Conversation That Did Not Continue

Nobody continued it. That is the thing.

The information I received at thirteen and fourteen was genuinely good, as far as it went. But it covered the beginning. Puberty, reproduction, how the body works in its early chapters. What it did not cover — what nobody covered, not the instructor, not the aunts — was what would happen thirty years later. The transition out of those early chapters. The second half of the story.

For years I heard about menopause the way you hear about a weather event in a distant city. Hot flashes. Night sweats. Always the air conditioning. My aunts referenced it in the way of something that had happened to them or was happening to them, vaguely, with a certain resignation, and then the conversation moved to something else.

Menopause was spoken of as an illness. Something to get through. Something to dread. Not a transition with stages and a timeline and specific physiological explanations, but a condition — uncomfortable, somewhat embarrassing, best managed quietly and not discussed at length in mixed company.

The word perimenopause I heard almost not at all. The word postmenopause I did not fully understand until recently. I thought menopause was one long season. It is not. But nobody explained the difference until I went looking for it myself, decades after anyone should have told me.

The Aunts and the HRT Debate

My aunts had opinions about hormone replacement therapy. Strong ones. Distributed across a fairly wide spectrum, as family opinions tend to be — and I should add there are twenty years between my oldest and youngest aunt, which meant their experiences and their doctors were not the same at all.

Some of them were on HRT and credited it with making the transition manageable. Others thought this was not a good idea at all. Their doctors had told them something different, or they had read something concerning, or they simply did not trust it. The family position on hormone replacement therapy was not a position. It was the kind of conversation that started strong and ended with someone changing the subject and everyone pretending it had been resolved.

For my sisters and me, the debate was academic. My mother was diagnosed with breast cancer at thirty-six. That diagnosis, delivered when she was younger than I am now by more than two decades, meant that HRT was simply not on the table for us. Our doctors were clear about that. We did not debate it. We filed it under closed and moved on.

What I understand now is that my aunts were not confused. Medicine was confused. They were just living inside it.

One Study

I attended a women’s health conference recently. I sat in a room full of women who were, like me, trying to piece together a map that nobody had handed them.

Someone mentioned the Women’s Health Initiative study of 2002. And something that had been vague in my understanding became suddenly clear.

One study. Published in 2002. Its initial findings, reported with a great deal of alarm, suggested that hormone replacement therapy significantly increased the risk of breast cancer, heart disease, and stroke. The medical establishment responded with understandable caution. Doctors stopped prescribing HRT. Women who had been on it stopped taking it. The conversation around menopause treatment changed almost overnight. The headlines were alarming. The alarm traveled much further than the evidence ever did.

What followed was two decades of women being undertreated, under-informed, and in many cases told simply to endure their symptoms. An entire generation of women may have missed access to treatment that could have helped them — not because the science was settled, but because one study, interpreted hastily, scared both doctors and patients away from a conversation that should have continued.

The study has since been significantly reanalyzed. The original conclusions have been revised. The current understanding of HRT is more individualized and less alarming than the 2002 headlines suggested. The North American Menopause Society and many leading researchers now take a very different view than the one that filtered down to most women’s doctors in the years after the study was published.

I am not a doctor and I have no interest in playing one on social media. I am simply a woman who sat in a conference room and felt something shift when someone said out loud: one study. Think about that. One study altered the course for an entire generation of women.

I thought about it. I am still thinking about it.

If you want to read more about the Women’s Health Initiative study and what the research shows now, here are four places to start:

The Women’s Health Initiative study site has the full history of the research and its ongoing findings.

The North American Menopause Society has current, plain-language guidance on HRT that reflects the most recent reanalysis.

The original 2002 JAMA publication is publicly available for those who want the primary source 

NPR’s Health News has an accessible plain-language account of the study’s legacy and how understanding has shifted 

What My Doctor Said in My Forties

I was in my forties when my doctor first mentioned perimenopause. He asked if I had any symptoms.

I said no.

He made a note and we moved on.

That was the conversation. The whole conversation. No explanation of what perimenopause actually was, how long it could last, what symptoms might eventually arrive, what the stages looked like, what would come after. No mention of the fact that I had been on birth control for many years and that this was relevant information in the context of perimenopause. No mention of the WHI study or the ongoing debates about HRT or any of the things I would spend the next decade and a half trying to understand on my own.

He asked if I had symptoms. I said no. We moved on.

I do not blame him. I think he was doing what doctors do: responding to what was in front of him, working within a medical culture that had not yet worked out how to have this conversation. He was not withholding information to be unkind. The information simply was not being given.

But I have thought about that appointment many times in the years since. How different the next decade might have looked if someone had sat across from me and said: here is what is coming, here is the timeline, here is the vocabulary, here is what to watch for, here is what questions to ask. Not a paragraph. An actual conversation.

What Our Mothers and Grandmothers Knew

Our mothers went through this. Our grandmothers went through this. Women have been navigating this transition since there have been women.

They did not have a manual either.

What they had was silence and endurance and the occasional exchange between women who had been through it and women who were about to. They had the debate about the air conditioning. They had the aunts with opinions. They had a cultural script that said this was something you got through, not something you understood.

I think about my grandmother. She ran a household and loved opera and made walnut rolls and taught me to bake and was, by any measure, a woman who paid attention to everything. She went through menopause at some point. I have no idea when, or how, or what it was like for her, because it was not something that was discussed. Not with me. Not, I suspect, with very many people at all.

The silence was not particular to her. It was the time period. You did not talk about your body in that way. You managed and you endured and you did not make a fuss. This is what women of that generation were taught, and they taught it to their daughters, and their daughters taught it to us, and somewhere in the transmission the actual information got lost.

What got passed down instead was the dread. Menopause as illness. Menopause as the beginning of the end. Menopause as something to lower your voice about.

Nobody passed down the map.

Why I Am Writing This

In the last five years, menopause has become a content category. It is on every platform, in every format, from every direction. Which is better than silence. I want to be clear about that. Better than silence is real progress.

But more content is not the same as better information. And visibility is not the same as clarity. You can swim in menopause content for hours and come up more confused than when you started, because the information is inconsistent, the terminology is used loosely, the experience varies so wildly from woman to woman that no single account covers your own, and the social media version of any medical topic tends toward the dramatic rather than the accurate. Not to mention that many of the people talking are trying to sell you something. They are not experts or doctors. They have simply found a profitable niche in women’s confusion and are mining it accordingly.

I have talked to three doctors about my hormonal health in recent years. I attended a women’s health conference. I have read more than I ever expected to read on this subject. And I am still, at fifty-nine, assembling the picture one piece at a time, finding out things I should have known years ago, connecting dots that someone should have connected for me.

I am not writing this series because I have answers. I am writing it because I have questions, and I think a lot of women have the same ones, and we have been quiet about it for long enough.

The manual nobody wrote. I am not qualified to write it either. But I can write about what it has been like to go without it, and what I have figured out along the way, and what I wish someone had said to me at forty or forty-five or fifty, in a room somewhere, clearly, until I actually understood.

I will be writing several posts in this series over the coming weeks. I hope you will stay with me for the conversation. And I genuinely want to hear from you — what is the thing nobody told you? What did you piece together too late, or only just learn, or wish someone had said out loud years ago? Tell me in the comments. This is exactly the kind of conversation that should have been happening all along.

If you enjoyed this post, I would love it if you shared it. You can find me on Facebook, Instagram, Pinterest and X — I would love to have you along.

If you would like to read more I suggest:

The Menopause Brain by Lisa Mosconi

The New Menopause by Mary Claire Haver

Estrogen Matters by Avrum Bluming and Carol Tavris

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Who Am I Now? How Midlife Didn’t Change Me — It Reminded Me.

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15 Comments

  1. This is a much needed post. I was 36 when I went into surgical menopause in 1988 due to endometriosis . No one was up on bone health back then and even though I went on estrogen immediately I didn’t know enough on protecting my bone health. I now have osteopenia. I am a health professional so these things are quite interesting to me. But you’re right not even my doctor really had a lot of help for me. I have remained on estrogen and am now 74. The women’s study did a lot of harm to women with its restriction on HRT. There is a great book called Estrogen Matters and it is ok to use it in menopause and even if breast cancer is in the history. It is on Amazon or free PDF on Scribed. DR Lisa Moore is a DPT who is osteoporosis certified PT and has a Facebook page and brings in speakers. I’ve learned so much with her help. Good stuff!

  2. I cannot find the regular comment block, so I am putting mine here. The book I found most helpful and gave to my daughter is by Duke medical doctor Christine Northrup: Women’s Bodies, Women’s Wisdom (Amazon). I see Maria Shriver has a new women’s wellness book, but I haven’t looked at it, have you? Brain fog was my worst perimenopause issue.

  3. Nobody told me that the vagina ages and that when you enter menopause and your estrogen levels drop your vagina’s lining tissue will weaken. If you cannot do HRT for reasons a professional menopause specialist told you then they should also recommend vaginal estrogen that stays local and heals that tissue. If you wish to have sexual relations later in life you need to keep that tissue healthy by supplying estrogen topically. Plus estrogen will help prevent bladder and urinary infections that plague many of us in later years and can be very serious…one symptom is brain fog like dementia.
    Keep up with a form of pilates exercises to keep the bladder and uterus muscles strong to hold them up vs falling/prolapsing down through the vaginal canal creating a serious surgical procedure or wearing a support sling not fun. Been on HRT since early 40’s, I’m 60.

    Oh and please Elizabeth resend you email to me a couple weeks ago..it’s not in my inbox:0)

  4. I applaud every single word you have written here. The experiences – all of them are just missing my picture and my name. Except I had no family that wanted to talk about anything and the pat answer when any uncomfortable question was posed, was just suck it up and move on. “Don’t be so dramatic.” Brilliant ignorance. I would have had a better chance at life being raised by wolves. Meopause and all that goes with that vacation time, my female gynocologist told me it was all in my head. A request for a blood test to check my hormones was received with an eyeroll. I was told that HRT absolutely was off the table since several of my birth mothers sisters – whom I did not even KNOW had breast cancer and died. So ride it out, lady, and don’t be so emotional. So much for quality healthcare. My mother died when I was 30 – no pearls of wisdom no NOTHING.
    Now- turning 65 in a couple days, I am just waiting to die with absolutely nothing left to look forward to and unable to find any joy in any single thing.

    I implore you to please keep going with your series. Take it nationally if you can. And tell it all from every rooftop.

    Thank you.

    1. Beth, thank you for sharing your experience. Sadly, that sort of talk and health care is prevalent. When my mother was diagnosed with breast cancer at the age of 36, and she started to cry, the doctor said why are you crying. My mom answered I have 4 kids, he said, “so what, they have a dad don’t they?

      65 is young and there is a lot of life left to live, I hope that you find someone or something that brings you joy.

      Have a wonderful day!

  5. I have been on HRT ever since my 50’s …I suddenly developed an allergic reaction to the adhesive of the patch and used systemic estradiol and progesterone.
    Now I’m in my 70’s…sexually active..heart healthy..go to the gym 3 days a week for weight lifting and cardio exercises.
    Recently switched to estradiol vaginal cream. I’m seeing a nurse practitioner that specializes in HRT and she is informative,supportive and awsome . I hope women find someone similar in their area.

    1. PJM,
      You hit the ail on the head, women need an informative, supportive practitioner to help navigate this phase in their lives. They do not need random advice from social media. Thank you for sharing your experience, it will be helpful to all who read the comments and the post.

  6. I pretty much had to figure things out for myself. My mother actually said that we had the “sex” talk when I was 3 years old and asked her where babies came from. She never told me about having periods, how to wear make-up or shave my legs. Come to think of it, she never really ever talked to me. When I was 49, (I’m now 72) I had vaginal cancer. Very rare for a woman of that age. They were very aggressive with my treatment. Chemo, internal and external radiation, and instant menopause. My doctor started me on HRT, but later advised against it. My mother would cry and make it about herself. I actually downplayed what I was going through to protect her. A few years later, with some therapy, I learned that my parents are narcissists. So many questions were answered. All those years I thought it was me. That clarity was a gift from God. So, with no sisters or other women in my life, I was on my own during menopause. Little help from my doctor. Thank you, Elizabeth, for writing about this. I think you’re going to help women with this stage in their lives. The biggest menopause blessing for me was that I found my voice.

    1. Nanci, thank you for sharing your story. Thank God you are still here 20 plus years later after your vaginal cancer. If you do not mind sharing, how did they or you find it?
      I am sorry that your mother was not a lot of help to you nor was your doctor. Thankfully your therapist was able to show you that YOU were not the problem and as you say help you find your voice. I think therapy is underrated, it gives you the tools to deal with the people in your life and to understand why they act the way that they do.
      I wish I had found my voice years ago, the good thing is that we have it now.
      Again, thank you for sharing and for reading the blog.
      Have a lovely day.

  7. God works in mysterious ways. One sunny morning in Sept I was making our bed when I “heard” a voice in my head say “Go to the doctor.” I thought that it was weird and blew it off. A few minutes later I heard it again. This time it was more insistent. It had been about 5 years since I had a Pap. We had moved to a new town and I hadn’t got around to finding a doctor. Lame excuse! I found a doctor and had an abnormal Pap. I felt great and had no symptoms. The day before Thanksgiving, I was diagnosed with cervical cancer. I was scheduled for a cone biopsy followed by a hysterectomy the next day. The cone biopsy was normal, but my very thorough doctor found some suspicious cells on my vagina. They were malignant. He cancelled the hysterectomy and I started chemo and radiation the first week of January. Four long months of waiting! I was blessed to have found a wonderful doctor who was so thorough. I found my therapist in a round-about way too. Our local bookstore was hosting an author who had just written a book on narcissism. I just happened to read an article about her visit in our very small local newspaper. My husband and I went to the book store to meet her. Finding her was a Godsend. I truly believe that we are never alone and are loved beyond our imaginations.

    1. Ellen, this story gave me chills. God saved you! He spoke to you not once but twice and you went to the doctor. I cannot imagine the wait, it must have been difficult. I hope that you had a lot of support during that time and while in treatment. Thankfully you had a very good doctor and you are still here to share your story today! For anyone reading your comment it is a reminder to go to your annual exams.
      As for your therapist, I could not agree more. They are a godsend.
      Thank you for sharing your story, I so appreciate your candor.
      Have a wonderful week.

      1. Thank you Elizabeth. I’m a strong believer in the power of prayer. My support came from the wonderful women in my church. My husband and I started attending morning Mass every day. We met a woman who led prayers for me. Her daughter-in-law actually was the radiation tech who gave me my radiation every day. Another coincidence? A friend of mine had an uncle who was a stigmata. He lived over 8 hours away, but just happened to come to our town and have a healing mass. I was blessed to have him lay his hands on me and receive his prayers. Even though having cancer was scary I never felt alone. God is great. Thank you, again Elizabeth.

  8. This was a great topic to cover. I don’t have any story to tell except that menopause was a very difficult part of my life. I started having symptoms in my early 40s that progressed over a 20 year period with late 40s being the worst. I was too afraid to go on HRT and just suffered through it. I am still experiencing night sweats at age 72. I haven’t seen a gynecologist for many years but I am thinking of going back but finding the right doctor is a real challenge. Keep writing about this topic that we all need.

    1. Harriet, thank you for sharing. You actually did have a story. Your symptoms started at for and progressed over 20 years. That is something that many do not know or realize will happen. And the fact that you are still experiencing symptoms at 72 is also a part of your story. If we all share our experiences I think the younger generation may learn something, it isn’t ever over.
      I hope that you find a wonderful gynecologist. Maybe you have a friend that you can ask to recommend one, that is how I found mine.
      Have a wonderful week and thank you for sharing.

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